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All Backchannels Entries Tagged 'digital doubles'

Who Owns Your Personal Health and Medical Data?

Reflections / Deborah Lupton

title When I speak at the Summit, I will note that the first issue to consider is for whom and by whom personal health and medical data are collected. Who decides whether personal digital data should be generated and collected? Who has control over these decisions? What are the power relations and differentials that are involved?